The coming week could prove to be a breakthrough for rare disease patients. A meeting of the Parliamentary Group on Rare Diseases will take place in the Sejm, where there is a chance that the Ministry of Health will finally present a government document on rare diseases and orphan drugs to parliamentarians.
MONDAY 26 July 2021
Sejm of the Republic of Poland
16.00 Standing Subcommittee on Social Policy (Jacek Kuroń Conference Room - Building F)
Topics of the meeting: Discussion on economic constraints on access to feminine hygiene products in Poland.
District Medical Chamber of Warsaw
'Come out with a face' training for spokespersons or those representing the hospital in the media. One of the objectives is to react appropriately, especially in crisis situations. Among the presenters are Professor Jerzy Bralczyk and journalist Maciej Orłoś.Day 1.
Tuesday 27 July 2021
Sejm of the Republic of Poland
10.00 Parliamentary Group on Rare Diseases (Room 04CD, Building U)
Topics of the meeting: 1. Plan for Rare Diseases and reimbursement in rare diseases of foodstuffs for special nutritional use; 2. Haemochromatosis - diagnosis, treatment, prevention.
12.00 Parliamentary Group on Child and Adult Immunization Safety (Room 04A, Building U)
Topics of the meeting: Compulsory immunization in the uniformed services
Supreme Chamber of Physicians
16.00-19.00 Physician on the Internet - selected legal issues (on-line training)
Moderated by Karol Kolankiewicz, Advocate and Anna Karkut, M.D., Institute - Health Law Specialists
District Medical Chamber of Warsaw
'Come out with a face' training for spokespersons or those representing the hospital in the media. One of the objectives is to react appropriately, especially in crisis situations. Presenters include Professor Jerzy Bralczyk and journalist Maciej Orłoś. Day 2.
Wednesday 28 July 2021
Supreme Chamber of Physicians
18.00-20.00 Recognising manipulation and responding appropriately
Leader: Łukasz Rompel
World Viral Hepatitis Day
SUNDAY 1 August 2021
World Breastfeeding DayInauguration of World Breastfeeding Week (1-7.08)
Source: cowzdrowiu.pl