The diagnosis and treatment of rare diseases are to join the health priorities in Poland. They will thus join the 10 others set out in a decree of the Minister of Health. The amendment to this legislation has just been submitted for consultation. There is a seven-day period for it.
It concerns an amendment to the Regulation on Health Priorities. It is due to enter into force the day after its promulgation. There are currently 10 health priorities. These are:
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reduction in incidence and premature mortality due to:
(a) cardiovascular diseases, including heart attacks, heart failure and strokes,
(b) malignant tumours,
(c) chronic respiratory diseases,
(d) diabetes;
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rehabilitation;
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counteracting the incidence of obesity;
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reducing the health consequences caused by the use of or dependence on psychoactive substances;
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prevention, treatment and rehabilitation of mental disorders;
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Increasing the effectiveness of prevention of infectious diseases and infections, including counteracting the effects of inappropriate antibiotic therapy;
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creating conditions conducive to the maintenance and improvement of health in the learning, working and living environment;
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improving the quality of the effectiveness of perinatal care and maternal, newborn and child health care up to the age of three;
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improving the quality of pain treatment and monitoring the effectiveness of this treatment;
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increasing the coordination of care for elderly, disabled and dependent patients.
Now improving diagnosis and treatment of rare diseases to be another priority. "Rare diseases represent a significant health and social care challenge, affecting 6 - 8 per cent of the population of each country. In the Republic of Poland, this group of conditions is estimated to affect more than 2 million people. In the majority of cases, these are genetic diseases, appearing already in childhood, often resulting in disability or premature death. Organisational limitations of the health care system mean that the diagnosis of rare diseases is often delayed for many years and the patient has difficult access to necessary health care services. With the resolution of the Council of Ministers of 24 August 2021, the document Plan for Rare Diseases was adopted, which defines a strategy for the creation of a health care system for patients with rare diseases, taking into account improved access to diagnostic and therapeutic processes," reads the explanatory memorandum.
Entire project here: Draft Order of the Minister of Health amending the Order on health priorities
Source: cowzdrowiu.pl