Association of Families with Angelman Syndrome

kontakt@zespolangelmana.org

www.facebook.com/zespolangelmanaorg

16 Okrężna Street
40-808 Katowice

a medical problem

  • Angelman syndrome

medical field

  • genetics

SMARD1 Family Association

601 572 345

stowarzyszenie@smard1.pl

smard1.co.uk

2 Barwinek Street, loc. 77
25-150 Kielce

a medical problem

  • disability
  • SMARD1

medical field

  • rare diseases

LAL-D Patients Association

Stowarzyszenie.lal-d@op.pl

www.facebook.com/profile.php?id=100093094753271

47 Jana Pawła II Street
05-326 Poświętne

a medical problem

  • LAL-D
  • lysosomal acid lipase deficiency

medical field

  • rare diseases

NBIA Poland Association

508 844 022

nbia.polska@wp.pl

nbia-poland.org

145 1/B 19 Czerniakowska St.
00-453 Warsaw

a medical problem

  • NBIA
  • neurodegeneration with iron deposition in the brain

medical field

  • rare diseases
  • neurology

Associations for people with Addison's disease and adrenal insufficiency

792 804 184

info@chorobaaddisona.org.pl

diseaseaddison.org.co.uk

ul.Dworcowa 5 lok. 22
30-556 Kraków

a medical problem

  • Addison's disease
  • adrenal insufficiency

medical field

  • rare diseases
  • endocrinology

Association for people with severe drug-resistant epilepsy DRAVET.PL

dravet@dravet.pl

www.dravet.pl

Starovapiennikova street 8/1
25-112 Kielce

a medical problem

  • epilepsy
  • drug-resistant epilepsy
  • the Dravet team

medical field

  • neurology

Association for Children with Achondroplasia

marta.skierkowska@odblokuj-zycie.pl

odblokuj-zycie.pl

7d Jara Street 2
02-988 Warsaw

a medical problem

  • achondroplasia

medical field

  • rare diseases
  • genetics

Vasculitis Association "Vasculitis".

459 341 875

vasculitispoland@gmail.com

vasculitis.org.pl

12 Szaserów Street
04-141 Warsaw

a medical problem

  • systemic vasculitis

medical field

  • immunology

Sarko Association

693 450 392

info@sarkoidoza.eu.org

sarcoidosis.org

14 Kopernika Street
40-064 Katowice

a medical problem

  • Besnier-Boeck-Schaumann disease
  • sarcoidosis

medical field

  • pulmonology

National Association for Relief of Chronic Myelogenous Leukaemia Patients

500 291 289

office@spbs.com.pl

spbs.com.pl

B.Głowackiego Square 34
39-400 Tarnobrzeg

a medical problem

  • leukaemia
  • cancer
  • blood cancer

medical field

  • haematology
  • oncology

Matecznik Foundation

694750395

kontakt@fundacjamatecznik.pl

www.fundacjamatecznik.pl

9/1 Jabłoniowa Street,
60-185 Skórzewo

a medical problem

  • postpartum depression
  • depression during pregnancy
  • PTSD after childbirth

medical field

  • Other

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